Kuluut

Kuluut
A Documentary by Charlotte Driessen
Crowdfunding teaser: 
funded project
22210
116%
€11.670
donated of €10.000
0
days to go
110
supporters

Project Information

About the project
LOCKLINEA documentary about the family of Marc and Suzanne Driessen. Living with a child with a syndrome, but most of all: the happiness of a syndrome.

In 2012 Coen, 4 years old now, was diagnosed with the Bohring Opitz Syndrome: a rare genetic disorder with which only 40 children worldwide are known with. The word ‘syndrome’ is often negatively associated. Therefore it’s even more extraordinary that we are going to highlight the positivity of a syndrome in this film. In this documentary I am going to explore how this special family gets their happiness and power. In a way I am going to have conversations with this family while doing ordinary activities.

For example: we are going to ride our bikes through the beautiful scenery of Limburg to the Maas. Coen has a special bicycle trailer and he is enjoying the sun shining through the plastic cover. We will cross the river using the ferry and will have a seat at a picnic bench on the other side. I will be on camera as well, in order to create the vision of a real conversation and therefore create the delusion that the camera’s aren’t there. I will ask personal, intimate and profound questions, but we will also discuss light and beautiful subjects like beautiful family memories. Beautiful images are an important factor in this documentary. Happiness can be found in the smallest things, therefore it is important to capture this in images as well. An example is a butterfly fluttering away. This message will even be increased by capturing the contrast as well: filming an EEG for example.

However, the focus will be on happiness, power and positivity and by doing this, we will touch our audience. Even though the conversations won’t be fully worked out on beforehand (to keep it spontaneous), there will be a clear thread recognizable which will link the images. Besides this, there is a special trip to Los Angeles planned. There we will have a meeting with Dr. John Graham, one of the few doctors who is actively involved in research on the syndrome. It is a wish of the family to meet him and maybe get more clarity. Also during this trip, the delusion will be created that the camera’s aren’t there. This meeting won’t be the only thing that we will film during this trip, also the trip itself and making new memories will be filmed. There is even an option to arrange a meeting with other families with a child with the same syndrome.
 

The family

In December 2003, Suzanne and Marc, both active and happy people, got their first child: Ties, a healthy and also happy, little boy. Four years ago they had another son: Coen. Unfortunately not healthy, but nonetheless very happy! The family wasn’t put out by the many hospital visits, lack of clarity, uncertainty and pain. The more or less continued their life as they had planned it. Suzanne has an administrative occupation on a high school, Marc has a successful job at Ordina and Ties is going to highschool soon. And what about Coen? Coen enjoys life the fullest and drags everybody along with him!


Charlotte Driessen

Besides being a documentary maker and director (International Media & Entertainment Management, NHTV), I am also the cousin of the family. I have a very strong connection with all four of them and that is also the reason why they want to open up to me in front of the camera and therefore share their happiness and power with the world. I am a loving person and I’m open for everything. I like to think out of the box and explore the boundaries. When people tell me that I can’t do something, I will do everything to prove them wrong. I am not afraid to show my emotions, I’m very spontaneous and this makes it real. The strong connection that I have with the family will therefore be expressed on camera as well. This is another aspect which makes this documentary extraordinary and special.

 

 

                                   

 

Quote that inspired the maker

Be happy with what you have and are, be generous with both, and you won’t have to hunt for happiness.
William E. Gladstone
This project was successfully funded on 23-07-2015

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